Waverly is 7 months old! Our little girl is growing and growing (Can
you tell by the pictures?!?)!!! Now that we're past Thanksgiving, we've
been pulling out some holiday outfits. So cute!
big accomplishment this month was feeding her by mouth! She's not
getting little tastes of food on the spoon, and loving it! So far she's
had bananas, sweet potato, ice cream, icing (at her 1/2 birthday
party), and chocolate creme brulee (on Thanksgiving). As you can tell,
we've added a few fun things in there!
Waverly got to have her first Thanksgiving this past month.
She also enjoyed another date with her man Ryan. (Ryan is 4 years old and has Miller-Dieker Syndrome like Waverly.)
had fun at the UVA vs. Virginia Tech game the Saturday after
Thanksgiving (although UVA played a horrible game!). The weather was
actually pretty warm, so we decided to go and had just planned on me
leaving with her once the sun went down and it got too cool for her to
be outside. However, we had a surprise! We were so blessed to be able
to spend the second half of the game in a suite with my cousin Diana
(who's sweet husband switched tickets with us so that we could be there
out of the cold). The rest of the family was jealous that we were able
to go up to a suite, since they've been attending games since the 1980's
and had never gotten to be in a suite yet! I guess you get special
privileges when you're special!
A cute Wahoo!
BIG news of this month is that our girl is BACK! Her smile and talking
have returned. She came back to us the week of Thanksgiving...what a
gift! We love seeing her precious smiles after missing them for a
month. We hope the seizures will leave her alone and let her "stay"
with us now.
is very interactive again with people, and loves for people to talk to
her and just be near her. She's also pretty content laying on her
playmat, in the swing, or in her carseat as well. She's really a pretty
easy baby in that she's not too fussy. She still loves to be cuddled
and held, but will let you know when she's had enough and just wants to
lay by herself. She's been growing, and is now 14.5 pounds! Today is
also the last dose of her steroids, so we may see the puffiness start to
go down some. She's still at about the 5th percentile on all the
growth charts, but her weight for height is at about the 90th
percentile! Chunker! She wears mostly 3-6 month clothes, although is
still in some 0-3 month pants (she's got a tiny waist, and pants tend to
fall off of her!), and can wear some 6-9 month shirts. Her arms seem
to be kind of short too, so we often have to roll up the sleeves on her
shirts and sleepers. As far as sleeping, she still has an awake period
in the middle of the night, sometime between 2 and 6. Sometimes it
takes her a while to settle back down to sleep. If it's any time before
5a.m., I usually give her melatonin to help her settle back down
(otherwise, she can be awake for several hours). She also seems to like
it when I put music on my ipod for her and lay it beside her head.
Alison Krauss is her favorite. :) She's had a cough for several weeks
now, but we've continued to monitor her closely, and other than that,
she's had no symptoms, so we think it's just her clearing her throat
from mucous or something. I think I've started to notice some "pretend"
coughing too to get attention. Smart girl! We have noticed her wrists
turning in more lately, so we are in the process of ordering her
splints for her hands, wrists, and arms to help with that. We are so
grateful for our sweet girl, and for how well she's been doing. As we
enter the winter and cold months, please continue to pray for her
health, that her body would be strong against all the germs out there.