More Beach Pics

Here are a few more pictures from the beach (late!).  This was Waverly's first time ever in a swimming pool.  She liked it!  :) 

 Big sister was so happy to have her little sister swimming with her!

 Getting some great-aunt love!

 She had some crazy hair too!

 A few family pics.  :)

Vacation!

I have been terrrrrible about updating our family blog lately!  I apologize.  I've done a little better keeping up with Waverly's blog, but life has been just busy!  With that being said, enjoy some fun pictures from our vacation last month! 

Kathryn got to ride down with Johnny's parents and aunt, and we just had Jackson and Waverly with us.  That worked out nicely.  :)  They both traveled very well, as good as we could have hoped.  I couldn't resist this sweet picture of Jackson napping in the car!



A picture of our campsite this year...

It was five sites away from the pool, which Kathryn absolutely loved the most.  You can see the pool area (fence) to the left.  Beyond that on the horizon is the beach.  It was within walking distance. 

We enjoyed a lot of time relaxing, swimming, reading, playing, and eating!  We all enjoyed lots of snuggles from Waverly, and she enjoyed being a beach bum!

 This is her after swimming in the pool, all wrapped up in a towel. 

 Here she is in her new neck ring.  It's a WaterWayBaby ring, and was really neat.  It basically keeps her head up and afloat, and lets her body enjoy the water.  It was neat to see her "weightless" in the water.  I was able to see her move and stretch in ways I've never seen before.  She's always enjoyed her bath time, but had never been in a pool.  I hope to be able to take her swimming more often and maybe even have some hydrotherapy sessions. 

 Kathryn and I enjoyed lots of time at the pool together.  Every moment she could get, she was in the water.  She's never had swimming lessons, but you'd hardly know.  She's all over the pool, even doing flips!  What a big girl!  She really loved swimming with Waverly too!

This was Waverly's first time ever in a swimming pool.  She liked it!  :) 

Kathryn was so happy to have her little sister swimming with her!

We enjoy lots of wildlife at the beach too since we camp.  This duck was eating peanuts out of our hands.  He even ate from Kathryn and Jackson's hands!  Here he was eating from Johnny. 

Apparently the situation ticked off another bird, who then pooped on Johnny's shirt!

There are also squirrels (who sometimes eat out of our hands)...

...and woodpeckers (can you spot him?).

 Waverly got lots of snuggles during the week.  Here she is getting some great-aunt love!

 She had some crazy hair too!

 We attempted some family pics too. 

Waverly at ONE year old!!!

Our sweet girl is ONE!  I just can't believe it.  What an amazing year this has been.  We are so very blessed by her.  

She started off the day by waking up a bit early for her with quite the diaper!  I had planned on giving her a nice long bath, so we went ahead and did that first thing for the morning.  She enjoys being in the water, especially when I pick her up off of her bath chair and hold her in the water to float around. 

After bathtime she enjoyed being pampered with lotion and massage. 

 Then she got dressed up in a pretty dress. 

 All that wore her out!  She fell fast asleep, and enjoyed some snuggle time with mama. 

As a special treat, we gave her breastmilk all day through her g-tube instead of the normal formula during the day/breastmilk at night combo.

She then got a visit from her Auntie KK, who brought her a balloon.  She really enjoyed looking at it and talking to it!  

 This is her talkative face.  Can you tell she's trying to communicate?

Then after dinner we had our family celebration.  She opened gifts with help from big sister and big brother.  

 Then she got a cupcake!

 She couldn't figure out how to blow out the candles, so brother and sister helped her.  

 She really enjoyed tasting the icing, and got a taste of ice cream as well.  She approved of both! 

 She also got some snuggles from Granddaddy. 

At the end of the day, she got to be rocked to sleep again by her mama (me!). 

Some fun facts about Waverly at one year old:
-She weighs 18lbs 13oz, which is about the 17th percentile for her age.
-She is 28 inches tall, which is the 18th percentile.  That puts her in the 50th percentile for weight-for-height (down from the 90th+ a while back!).  So she's thinned out a bit!
-Her head circumference is 17.3 inches (21st percentile). 
-Some of her favorite things are snuggling (she LOVES to be held!), her family and siblings and friends, faces, music, lights, tv, having her head rubbed, tastes of sweet things, and bath time.
-Some things she doesn't like are loud noises, having her feet tickled, seizures, cold things touching her, and her nasal cannula (for her oxygen).
-Even though she seems to have thinned out some, she still has awesome arm and leg rolls, and the biggest sticky-outy tummy! 
-She is still on oxygen, although she's able to go without it some during the day when she's awake.  When she's sleeping, she needs it though.
-We like to dress her in dresses or baby doll shirts.  Otherwise, her tummy sticks out of any other kind of shirt we try. 
-Her arms and legs are short, so we often have to roll up long sleeves or pant legs because we have to get a large enough size to fit over her belly! 
-She is very smiley in the mornings especially, and will still coo responsively to people when she's in her talkative mood. 

Waverly, wow, what a year!  We are so very thankful for the Lord's blessing that you are in our lives, and in so many others' lives.  We love you so very much.  Soon after you were born, and we started receiving your various diagnoses, your daddy brought us to this verse in John: "Jesus answered, 'It was not that this man sinned, or his parents, but that the works of God might be displayed in him.'" (John 9:3).  We have prayed since before you were born that God would be glorified in your life, and we truly believe that today, a year later, He has been.  We pray that He will continue to receive the glory, for all He's done and for all He's created in you.  We praise Him for your beautiful life, and are thankful for this wonderful year that He's given us with you.